Living with Endometriosis feels like running a marathon that never seems to end. Add a full-time role, and the challenge only grows. Here, I’d like to share my experience managing Endometriosis while working at British Transport Police (BTP), where I have thankfully found support, understanding, and meaningful accommodations.
What is Endometriosis?
Endometriosis is a chronic, often painful condition that affects those born female or assigned female at birth. It involves tissue similar to the uterus lining growing outside of it, impacting nearby organs like the ovaries, fallopian tubes, bladder, and bowel. Symptoms vary widely and include severe pain, irregular periods, fatigue, and gastrointestinal issues.
My Discovery of Endometriosis
For years, I attended GP appointments, managing pain without knowing the cause. When symptoms worsened, I sought private healthcare and was diagnosed with Stage 4 Endometriosis. The diagnosis brought relief through validation, but it also marked the beginning of learning how to manage a chronic condition while working. Surgery (a laparoscopic excision) significantly improved my quality of life, though future procedures may be necessary.
Challenges in the Workplace
Living with Endometriosis presents unique challenges at work:
- Unpredictable Symptoms: Some days, I feel capable and energized; other days, pain and fatigue make it hard to get out of bed, complicating workday planning.
- Managing Pain and Fatigue: Chronic pain and fatigue make focus a struggle. Pushing through can lead to burnout, so I’ve learned the importance of pacing myself—even though it’s not always easy.
- Stigma and Lack of Understanding: As an “invisible illness,” Endometriosis can be difficult to explain. I initially worried about sharing too much, fearing it might reflect poorly on my capability or commitment.
How British Transport Police Has Supported Me
BTP has been supportive in ways that have made a big difference in my work-life balance:
- Being Transparent: Opening up about my condition with my managers allowed me to secure reasonable accommodations. Many people I spoke with either knew someone with Endometriosis or had similar health challenges, which made me feel less isolated and more supported.
- Flexible Work Arrangements: BTP’s commitment to flexibility has been a game-changer. Working remotely or adjusting my hours when necessary has allowed me to manage symptoms effectively while still meeting my responsibilities.
- Reasonable Adjustments: BTP has worked with me to find suitable accommodations, such as scheduling breaks during the day or ensuring that my workload is manageable. These adjustments have been vital in helping me stay balanced and productive.
What’s Helped Me Along the Way
In addition to BTP’s support, here are a few strategies that have helped me manage my work and health:
- Taking Breaks and Setting Boundaries: I schedule short breaks throughout the day to stretch, move, and reset. Setting boundaries around my work hours has also allowed me to focus on recovery outside of work.
- Finding Community and Support: Connecting with others who have Endometriosis has been incredibly validating. I volunteer with Endometriosis UK, and their community has provided tips and support from people with similar struggles.
- Prioritising Self-Care: I focus on balancing rest and exercise, paying attention to nutrition and managing stress. Investing in my well-being enables me to show up better for both work and myself.
Moving Forward
My journey with Endometriosis is ongoing, and there are challenging days as well as days when I feel strong and capable. Living with this condition has taught me resilience, patience, and self-advocacy. Having BTP’s support along the way has been crucial, reminding me that even with chronic conditions, it’s possible to thrive both professionally and personally. For anyone balancing a chronic condition with work, know that you’re not alone, and that with the right support and adjustments, a fulfilling career is possible.
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